Help Jenny Get Her Life Back

Help Jenny Get Her Life Back


Jenny is a very loved, happy, strong and courageous person, mother and wife, who has been fighting a battle with a rare form of benign but very dangerous brain and spinal tumors for almost 20 years.

Around 20 years ago Jenny began experiencing problems that were very alarming.

Headaches, flashes of light and nausea were frightening and called for swift action and surgery to save her life.

She was found to have brain and spinal tumors.

At the time, no one really could identify them and it took quite awhile just to figure out what she had.


After 6 Weeks of being told she had cancer the news came back, the tumors were benign, but still very dangerous.

Choroid plexus papilloma tumors are rare, and very dangerous benign tumors arising from the lining of the spinal canal and the membranes that line the inside of the brain and produce spinal fluid..

The first surgeries were for a tumor in her cerebellum that was causing tremendous pressure on her brain and a week later for 3 spinal tumors that needed to be surgically removed to prevent paralysis, interference with nerve signals and pain from pressure on the nerves..

The cerebellum coordinates voluntary movements such as posture, balance, coordination, and speech.

The surgeries were successful, Jenny's recovery was painful and we were told they cancer and that she would be having chemotherapy. After 6 weeks of fearing the worst, the tumors were found to be benign and she was monitored for 3 years with no sign of the return of any tumor.

For the next 16 years, she lived free of symptoms and was happy and pain-free.



Then, three years ago she began stumbling, falling down and experiencing drop foot, a condition where the right foot would not point upward.


Her legs were showing signs of distress, very severe pain and she had to start using walking aids to get around.



While sitting on a heating pad to relieve her pain,

She developed what is called a pressure sore from 

We had no idea how dangerous a pressure sore could be and how fast they can turn into a life-threatening situation because of infection.

After an emergency MRI, they discovered the tumors in her brain and spine that we thought were gone forever were back with a vengeance and about to change Jennys life forever.


Jenny had surgery Oct, 2012 to remove most of the spinal tumors. The brain tumors were left since they are not causing symptoms or problems.


She had a rough go of it and things went wrong.


Complications from spinal surgery and a massive infection (from a pressure sore caused by sitting on heating pad to relieve pain before surgery), led to severe nerve damage and paralysis in both legs. 


This put her in bed for the last 2+ years in massive amounts of pain from an inoperable tumor pushing on the nerves in her spine.

The surgery to repair the damage done is called a flap surgery.
A vascular surgeon cleaned out the wound and left a hole the size of a football. She was on a wound vac for two weeks and then had her flap surgery. 

Extremely weak because of extreme nausea and weight loss, Jenny came home to a very bad situation. An Inexperienced family of caregivers and a very poor nursing service. Which we dropped.




Slow healing of the flap surgery sent Jenny to the ER where we received a referral to the wound care center at St Joesph Hospital



This was our first glimpse of true professionalism and real care.
58 round trips by ambulance for hyperbaric treatments and as I recall 12 trips by ambulance to see the wound care doctor. 

The bills were piling up and very large.



Two years of learning the hard way with very little help.


Months of very expensive in home Physical therapy and occupational therapy did some good and we met some of the most caring people we have ever known.



But it was still not enough. Extreme pain stopped Jenny's progress.

She has required caregivers, her husband Roy Barnett and children Amber and Chris Barnett mostly, to be present 24/7 for the last two+ years. With almost no help for the first two years.

Jenny has had physical therapy and occupational therapy from the finest therapists available.
She has made progress, but the pain from the inoperable tumor has hindered that progress tremendously.


An attempt at a solution to the most of the pain that has been bringing her progress to a stop has been carried out.


But it did not help, in fact, she experience agonizing muscle spasms from the procedure.


Jenny underwent a radiofrequency denervation procedure  to calm the pain from the pressure on the nerves.


This was hoped to enable Jenny to pursue what she needs to do to become as capable as possible and get her life back.



Her husband Roy with the help of their children has been a 24/7 caregiver to Jenny with much-needed help from their children.

Not able to go to work because Jenny has needed his help, the financial expenses from medical bills, insurance costs, deductibles, and co-pays have been immense. Along with the costs of daily living.

Thousands of dollars in medical bills have been piling up and there are more coming.


Expenses for a person with paraplegia are enormous, according to the Christopher and Dana Reeve Foundation, paralysis resource center, average $66,106 a year. 


The goal for this fundraiser was originally $20,154. To cover Jenny's major expenses for one year and pay off her medical bills for her care.

The need for care does not stop, the expenses are ongoing and we have decided to extend the fundraiser out over the next 12 months to care for Jenny.

You can find a breakdown of those expenses here by following this link. 


https://drive.google.com/file/d/0B3fCN51Agrt4aXhLY0hwYzFCYk0/view?usp=sharing

With the help of Roy’s Mom and Sister and a small amount of disability, we have been getting by with much less, but at a cost of Jenny’s care not being what it should be to keep her progressing at the rate that she should and severe financial stress on the whole family.



Advanced physical therapy approaches that Jenny needs are very expensive and insurance companies put a very low priority on it.


At 45 mins for each visit very little seems to be accomplished except for practice getting in and out of a car.

She dreams of independence, but she needs the financial capability to pay for the care she desperately needs.


Jenny has had top-notch nurses looking out for her. 

She now has a new nursing service taking care of her needs.

Right now it is Franciscan Home Health.


These are amazing people and we are, at this point, Just getting to know them.

To do their job properly, repairs and replacements are needed for the equipment Jenny has, along with durable medical equipment and much needed modifications to the house. (Enlarging doorways, ramps, lifts, etc.)


The upcoming costs of insurance, deductibles, supplies and the costs daily living with a major disability are enormous. 




She needs allot more specialized treatment from urologists, a brain specialist to preserve her mental abilities, Neurologists, digestive experts, physical therapy doctors, physical therapists and occupational therapists.



Plus membership dues at the YMCA to keep her active. The specialized equipment there is absolutely needed.


Jenny is alert and she is very upset by the financial pressure and the lack of progress that she knows she should be making.

She wants her life back.

The need is urgent and immediate.

The bills are coming in because the New Year is here and gone, the large bills coming in from the nursing service is the biggest challenge, she needs more care.


In Sept of 2014, her husband Roy and their daughter were in a rear end collision and another in Sept 2015, just as they were really very close to finishing treatment for the first whiplash.

Severe whiplash has put both of them in pain which makes it very hard to give Jenny the full attention she needs.


They are still being treated for their injuries

Jenny's basic needs are met and she is taken care of but she is not getting the activities and exercise she needs because of the limitations caused by the whiplash. 


This is why we need more help for Jenny, a wheelchair van would make a world of difference in Jenny's quality of life and that takes big money.


The challenges of paralysis are overwhelming for anyone and Jenny has exhibited a tremendous amount of courage through this whole battle.

She has been held back in her progress and has felt the pain and stress from the financial challenges.

She is ready to move on, put the pain behind her and live life to the fullest that she can.

The success of this fundraiser through your generous gifts will change Jennys life in a tremendous way for the better and give her the opportunity to live a much better life.


We need good people to step up and help.


Jenny is now engaged in the physical therapy and occupational therapy needed to overcome the challenges ahead to gain more independence and her pain now is under control.

A new power wheelchair for her independence is here and paid for by insurance last year.

A van is very much needed to use the chair fully, which will be the focus of another fundraiser to come.

Wheelchair vans are expensive.

From $30,000 used to $60,000 new.

Right now covering the monthly expenses and paying down medical bills has stopped us from purchasing a van which she really needs because car transfers are really hard on her.



A solution to the most of the pain that has been bringing her progress to a stop has been carried out. But it did not help in fact she experience agonizing muscle spasms from the procedure.

Jenny underwent a radiofrequency denervation procedure soon to calm the pain from the pressure on the nerves.

This was hoped to enable Jenny to pursue what she needs to do to become as capable as possible and get her life back.

It turned out to be a setback. But pain medication is now working and giving Jenny hope. But not without side effects.

Natural solutions that help are available but expensive enough to keep her from going that route right now.


Being free from pain is just the start.

Your generosity can be the means to overcome the financial burdens and obtain the equipment and supplies needed to make her dream of a much better life a reality.

How much you help is up to you, there is great power in numbers.




Please give now.

 

Please click the Donate Now button here on this page follow the easy steps to donate to help Jenny get her life back.

 

I know not everyone is comfortable with giving money over the internet. 

You can also

 Mail a check or money order to our house made out to:

Roy Barnett ( Jenny's Husband)

11016 8th Ave Ct S 

Tacoma Wash 98444

Thank you so much from Jenny and her family.

 

Please help us get the word out

by sharing Jenny's fundraising page on your Facebook page, website, by email or any other way you feel comfortable with.

Here is the link to share.

 https://www.youcaring.com/help-Jenny-get-her-life-back

 

Thank you so much,

Jenny's Family

The Youcaring website uses WePay as a processor. Please use the button below If you choose to use Paypal for US Dollars.
Thank You!


For Donations in International Currency, Please Click the World Map above.

Please, click the Donate Now button here on this page follow the easy steps to donate to help Jenny get her life back.


I know not everyone is comfortable with giving money over the internet. 

You can also

 Mail a check or money order to our house made out to:

Roy Barnett ( Jenny's Husband)

11016 8th Ave Ct S 

Tacoma Wash 98444

Thank you so much. 

Jenny and her family.

NOTE: With your donation, the contribution to youcaring.com is OPTIONAL, you can edit the amount to $0 if you wish to.



If giving is hard right now please help us get the word out by sharing Jenny's fundraising page on your Facebook page, website, by email or any other way you feel comfortable with.

Here is the link to share.

 https://www.youcaring.com/help-Jenny-get-her-life-back


<iframe src="https://www.youcaring.com/fundraiser-widget.aspx?frid=277311" width="335" height="454" frameborder="0"></iframe>

Thank you so much,

Roy

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